WeHaveLupus.com is back online. This site is a free internet forum community for patients and family members diagnosed with Lupus Erythematosus. I started this website in November 2001 for a good friend of mine who’s daughter succumbed to Lupus in 1999. The site is moderated by “SaySuzie” who has been an incredible source of inspiration and support for me personally. I worked with her a lot in the studio and produced several soundtracks for her including a solo CD project.
What I like most about this site is how many people it has helped who are at their wit’s end. Lupus is an especially frustrating disease because patients often physically look healthy, and it can be very difficult for friends and family to understand why they are in such pain and experiencing fatigue. Lupus can go in remissions and come back at any time. Some patients may go dozens of years without recurring symptoms. It can hit at any time at any age, but my understanding is it typically surfaces in early adulthood.
Major kudos to Saysuzie for helping develop this community which is now helping so many people. And thank you Saysuzie for standing by me!
Please let me know what happened to the wehavelupus website. I’ve lot contact with so many people I care about. If you can get a message to saysusie I would appreciate it.
Thank you so much
Susan
Hi Susan,
All forums should be back online 05/05/08.
In the future if the website ever goes down, members can contact me here.
Thanks so much for passing on this info. Thought I had succumbed to brain fog again! Lol. Look forward to seeing your site back on line.
God Bless!
Petalouda58
Hey, hows it goin with WHL forums, I cant help but notice that you may be having problems changing servers???? I have noticed you may still be out of country and I am in
Sacramento and computer litterate,,,, is there anything I can do to help
Terry
Hi Terry,
Yes, I’m currently living in China. I’m bringing back sites one at a time – WeHaveLupus is part of a larger network. Unfortunately I do them in alphabetical order so WHL is last on the list. Should be up within a day or so.
Everything back online now.
I havent been able to get onto the wehavelupus website in a while what happened has it been moved please let me know if you can i was getting some very helpful advice from the website
Hi Jackie,
There is a DNS problem which should be fixed within a week or a few days. I have been very upset that we had two outages back to back – will be back up soon.
I don’t anticipate problems after this. It’s partly due to the fact that I live in China now and has taken a while to get everything settled with my websites during my relocation. Thank you VERY much for your patience.
Thanks for responding you guys are also so nice and helpful thanks